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Parker

Parker

 

Parker was born on Dec. 19, 2013 and has been in and out of the hospital since birth. He has a twin sister named Emma. He was transferred from the Foothills to the Alberta Children’s Hospital (ACH) at just 2 days old to have his first of many lifesaving surgeries. Parker was born with a malrotation of the gut, which means his intestines were twisted and backwards. His appendix was on the wrong side and he had an obstruction which required a LADD procedure. At one month old, we were told his 1st surgery was unsuccessful and he was clinically diagnosed with Megacystis Microcolon Hypoperistalsis. On top of his GI issues, he was also born with a heart murmur that needed to be closed, and hydro nephrosis of the kidneys with an obstruction in his ureters with grade 3 reflux. By his 2nd month, Parker had undergone 2 bowel surgeries, giving him an ileostomy and a colostomy, kidney surgery that created two pyelostomies and a PDA ligation in the Edmonton Stollery.


Having gone through so much in such a short amount of time, Parker returned from Edmonton with a massive stomach bleed, went into shock, became septic and almost unrecognizable from cholestasis. By this time, he was wearing 2 ostomy bags, 2 diapers, had more holes then we ever thought possible, NG tubes, breathing tubes, suction tubes and about 15 lines attached to his body connecting him to machines. These times were the darkest, grimmest and scariest of our lives. I remember thinking this can’t be real, it’s just a bad dream, Parker’s going to be fine and we’re going to take him home very soon. At that time, I didn’t fully understand how sick my son actually was and how his future would look. This was about the time that the Gastroenterology (GI) team was called in to consult and assist.


The first member of the team we met was Dr. Gary Galant, along with Dr. Decker Butzner while in NICU. I remember Gary spending about 2 hours outside Parker’s room just reading through Parker’s binder trying to a get an understanding of what was going on with him. We had no idea then just how complex Parker’s medical conditions were and how our encounter with the GI team would turn into a close relationship for years to come. His Doctors quickly came to realize that Parker was no textbook case, therefore treating him was challenging because everything he shouldn’t have done, he did and everything that couldn’t happen, happened. Parker spent 3 months in NICU before being stable enough to transfer onto Unit 2, where he has spent the majority of his life.


Parker has been under the care of every single GI doctor at the ACH. We’ve been at the hospital long enough to know most of its staff and have worked our rounds. Through it all, I cannot stress enough how lucky we are to have not only a facility like the ACH but how extremely blessed we are to have all these amazing doctors care for our children. Trust me when I say we have the best GI team in Alberta, in Canada, if not the world. We have at our disposal a specialist in every facet containing to GI…we have a motility expert in Dr. Yeung, a hepatology expert in Dr. Martin, and a gut specialist in Dr.Boctor , just to name a few.


The last two years have been filled with ups and downs. When the Sara Faith Hogan Memorial Foundation chose to support our family, it was certainly an honor and welcomed relief. With Ann on extended maternity leave and living on one income, our financial situation was something we tried our best to keep up with. When Parker was finally stable, it dawned on us how much financial trouble we were in. The SFHMF allowed us the time to re-organize our lives. To provide care for Parker’s twin sister, Emma, while we split our time at the ACH with Parker, catch up on missed bills which were many, diapers times two, formula, meals, it was simply put, a blessing for our Family. The work and care SFHMF provides to the community is something we will never forget. Thank you for your continued support and thank you for your visits when Parker is admitted.


Parker is doing well. We were discharged a 2nd time in July 2015 and home. Parker did have to be admitted December 2015 and required an emergency surgery adding a Nephrostomy tube to his right kidney. This would be our 2nd Christmas at the ACH and this time around, it was one that was very memorable for the right reasons. We have made many friends during our stay and the ACH goes out of their way to make the holiday’s special. Many visitors, including the big guy in Red came to see Parker. We feasted and we were Merry.


Currently, Parker is at home and a scheduled surgery on February 12th to remove the Nephrostomy tube as well as resolve an issue with his right Kidney. We thank the Sara Faith Hogan Memorial Foundation from the bottom of our hearts. Our journey continues and we hope to assist the foundation any way we can.


 

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Sarah Faith Hogan

november 8, 2004 - january 22, 2006

The Sarah Faith Hogan Memorial Foundation was formed in loving memory of Sarah Faith Hogan and is dedicated to the selflessness and courage of Sarah’s grandfather and mother, Chuck and Cathy Hogan.

 

The Hogan’s immediate and extended family are a true inspiration and a testament to the power of love and the family bond.

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