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Mackenzie Grace Kinley

Dathatreyan

 

I was 2 in August. At 2 days old I began having seizures while mom was still admitted after having me. At 5 days old I was admitted to the Alberta Children�s Hospital for testing. Turned out there was some abnormalities in my brain causing seizures. Seizures only got worse and by the time I was 13 weeks old I had to have brain surgery as medications were not helping me. Seizures caused me to spend much time in the hospital during my first year. When I was about 9 months old I was diagnosed with Neurofibromatosis Type 1 (NF1). This condition causes my body to grow tumors on my nerves, with a possibility of learning and behavior struggles later on. I have multiple tumors, and have had 2 surgeries to debulk them as there is no current treatments. NF1, and Epilepsy have slowed my learning and made it hard for me to learn to move as a baby. I continue to struggle to move and need a walker to help me walk, even when I learn to walk on my own I may be too tired to always walk so my walker may still go everywhere with me. I am lucky enough to have been able to find a school to go to at a young age so I can learn how to play and be a kid. My last seizure was almost a year ago which has allowed my brain to grow. I am learning to talk and use sign language. My parents are so proud of me. Sarah Faith Hogan Memorial Foundation has made it possible for me to have my walker and go to school. This has aided me in growing in all the ways my parents had hoped were possible.


 

Sincerely

- Mackenzie's Family

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Sarah Faith Hogan

november 8, 2004 - january 22, 2006

The Sarah Faith Hogan Memorial Foundation was formed in loving memory of Sarah Faith Hogan and is dedicated to the selflessness and courage of Sarah’s grandfather and mother, Chuck and Cathy Hogan.

 

The Hogan’s immediate and extended family are a true inspiration and a testament to the power of love and the family bond.

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