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Nathaniel Petruk

Cantius

 

SWe welcomed our precious son Nathaniel into the world in July of 2013. Our joy was short lived, and was replaced with fear of the unknown. He was born flat and had to be resuscitated. From here our world changed. We thought we were going to be having a "healthy" baby. Everything went well throughout the pregnancy. I had many ultrasounds and biophysicals due to excessive amniotic fluid. Nothing showed up on any tests.

 

Nathaniel spent the first 18 days of his life in the hospital. He had test after test, and the doctors continued to find more and more health anomalies. He was diagnosed with 4q duplication, only the 61st known case in the world. He also has a bicuspid aortic valve, anomalous origin of left coronary artery, subglottic stenosis, veleopharyngeal insufficiency, posterolateral collapse of pharynx, micrognathia, swallowing dysfunction, ottis media with effusion and mild conductive hearing loss, septo optic dysplasia, left ptosis, sleep disordered breathing, stridor, GERD, triphalangeal thumbs, and global delays.

 

He has had 6 surgeries to date, too many procedures and tests to count. He is currently waiting on 3 more surgeries. We do not know what Nathaniel's future holds. The 4q duplication affects each person differently, and also has different issues depending on what bands of the chromosome are duplicated. Nate has a long road ahead of him. He is a very loving, gentle soul who has taught his family what life is all about!

 

I have not been able to return to work since Nathaniel's birth. His father has also lost two jobs due to Nathaniel's medical needs. At this point he is not able to find a job, he works in health and safety in the oil field. All of the appointments, surgeries, and hospitalizations have taken a toll on our lives. We worry about our bills piling up, losing our home, and where we are going to get money to cover everything. The Sarah Faith Hogan Memorial Foundation helped us when we needed it most!! SFHMF has eased the burden of our financial worries, and we can now focus on the most precious part of our life! We can never thank the foundation enough for everything they have done for us!! They gave us hope, and showed us love when we needed it most! We will be forever grateful!!

 

Elisha & Shawn

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Sarah Faith Hogan

november 8, 2004 - january 22, 2006

The Sarah Faith Hogan Memorial Foundation was formed in loving memory of Sarah Faith Hogan and is dedicated to the selflessness and courage of Sarah’s grandfather and mother, Chuck and Cathy Hogan.

 

The Hogan’s immediate and extended family are a true inspiration and a testament to the power of love and the family bond.

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